Asbestos Disease Support Groups

There are a number of groups which provide information and support to people with asbestos-related conditions and their families. Contact them for more information. The first two are Victorian.

  •  Asbestos Council of Victoria (GARDS)

    The Asbestos Council of Victoria is the advocacy arm of Gippsland Asbestos Related Diseases Support Inc. Its logo incorporates the two names ACV/GARDS. It is located in Gippsland and is a not for profit, charitable organisation.

    The Asbestos Council of Victoria has an elected Committee of Management who govern the affairs of the organisation comprising of volunteers and one paid staff member. It provides a range of community awareness and support programs, including a regular monthly support group meeting as well as a monthly evening organisational meeting. ACV/GARDS provides information and support 24/7, and produces a quarterly newsletter. It has an office where the general public can access information and support 5 days a week. ACV/GARDS provides medical equipment to asbestos sufferers in the Gippsland community with oxygen concentrators, conserving devices, nebulisers, wheel chairs etc.  
    211 Lloyd St, Moe, Postal address: PO Box 111 Moe, Vic. 3825
    Ph. 0351277744 Fax. 0351260354, Contact page, or Email: 

    This organisation was an amalgamation of ADSVIC and AISS. However, due to lack of ongoing funding, the organisation has ceased operating. Its website is still available as it has useful information, including a very informative video The Third Wave, which everyone should make sure they see. The AsbestosWise website is still accessible and has some very good and useful information on it.
  • The Bernie Banton Foundation

    The Bernie Banton Foundation is all about asbestos awareness, education and advocacy. It is an Australian based registered not-for-profit organisation that aims to make a difference by helping to alleviate exposure to asbestos, in the hope of eventual eradication of asbestos related disease. It also offers support and comfort to sufferers and their loved ones. Karen Banton, widow of Bernie Banton, says on the site: "Bernie and I gave some thought to the idea of a foundation bearing his name, around the time of his diagnosis in August 2007 with mesothelioma, an asbestos-related cancer.  Following Bernie's initial diagnosis of asbestosis in 1999, he became a passionate fighter for justice on behalf of asbestos disease sufferers and their families.  Bernie was also a man of great compassion.  He felt it both humbling and an honour to effect positive change and inject hope for Australians everywhere, through his 'never take no for an answer' attitude."

    The Foundation provides support and information to anyone in Australia and New Zealand via a telephone service.  Go to this page for contact details.
  • The Asbestos Diseases Society of Australia has asbestos information and other services. 

    ADS is a caring, non-profit, charitable organisation founded in 1979. It provides counselling and support services to those who develop asbestos-related diseases and their families; economic assistance to those who suffer financial hardship or social disadvantage as a result of contracting asbestos-related illness; lobbying and advocacy in asbestos-related matters; fundraising for medical research and support services for asbestos diseases victims and their families; raising community awareness of the dangers associated with asbestos in the community, and providing information.
  • Asbestos Diseases Foundation of Australia  

    The foundation was founded to represent the needs and interests of asbestos disease victims, through information exchange, support networks, referral to medical and legal help and lobby efforts. The organisation is based in Sydney, but can provide information, etc to anyone seeking it.      
  • Asbestos Disease Support Society

    ADSS  is an organisation of people who have an asbestos related disease, their families, friends and carers as well as unions, asbestos industry representatives and related government departments.  The Society, which is self-funded, and not for profit, focuses on creating awareness and supporting the growing number of sufferers of asbestos related disease now and into the future. It works closely with medical and legal professionals experienced in asbestos related diseases.
For an list of International Asbestos Diseases Support Groups, go to this page of the International Ban Asbestos Secretariat website.

And from overseas - There are many more international organisations - go to this page for more links.

Last amended January 2020